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General

A rare disease is taking his vision. A gene therapy could help — if he can get it

Source: cnbc September 10, 2026 · 04:00
A rare disease is taking his vision. A gene therapy could help — if he can get it
Photo by Tima Miroshnichenko · Pexels
From the publisher
A well-connected family’s fight to access a potential treatment for their son highlights the barriers most rare disease patients struggle to overcome.
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